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Talking Cancer—Cancer Talking: A Linguistic and Thematic Analysis of Patient Narratives

  • Ad A. Kaptein*
  • , Pim B. van der Meer
  • , Fleur L. Fisher
  • , Hanneke W. M. van Laarhoven
  • , James W. Pennebaker
  • , Ad J. J. M. Vingerhoets
  • *Corresponding author for this work
  • Leiden University
  • Utrecht University
  • University of Amsterdam
  • Amsterdam UMC
  • University of Texas at Austin
  • Tilburg University

Research output: Contribution to journalArticleAcademicpeer-review

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Abstract

To explore “the lived experience” of patients with cancer through narratives, in-depth interviews with 20 patients were conducted in the patients’ homes—“at the kitchen table.” Interviews were audio-recorded, transcribed, and analyzed following the Linguistic Inquiry and Word Count (LIWC) methodology. Thematic Analysis was used to explore themes in the narratives. Scores on relevant LIWC dimensions of the 20 patients were compared with norm data for respondents without cancer. Patients with cancer scored higher on “anger” and “sadness” (psychologic processes dimension); lower on “insight,” “causes,” and “tentatives” (cognitive processes dimension); and lower on “religion.” Major themes identified from the Thematic Analysis were resilience, fatigue, social relationships, turning inward psychologically, shared decision-making, and psychological support. Narratives of patients with cancer are a source of rich data on how persons with cancer make sense of their illness, its medical management, and its psychological and social consequences. Qualitative methods of data analysis (LIWC; Thematic Analysis) are a highly valuable element in the methodology of exploring patient experience.
Original languageEnglish
JournalJournal of Patient Experience
Volume11
DOIs
Publication statusPublished - 1 Jan 2024

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

  1. SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well-being

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