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Sharing brain imaging data in the Open Science era: how and why?

  • Kathrin Giehl
  • , Henk-Jan Mutsaerts
  • , Kristien Aarts
  • , Frederik Barkhof
  • , Svenja Caspers
  • , Gaël Chetelat
  • , Marie-Elisabeth Colin
  • , Emrah Düzel
  • , Giovanni B. Frisoni
  • , M. Arfan Ikram
  • , Jorge Jovicich
  • , Silvia Morbelli
  • , Wolfgang Oertel
  • , Christian Paret
  • , Daniela Perani
  • , Petra Ritter
  • , B. rbara Segura
  • , Laura E. M. Wisse
  • , Elke de Witte
  • , Stefano F. Cappa
  • Thilo van Eimeren*
*Corresponding author for this work
  • University of Cologne
  • Jülich Research Centre
  • Amsterdam UMC - Vrije Universiteit Amsterdam
  • Amsterdam UMC
  • European Brain Council
  • University College London
  • Heinrich Heine University Düsseldorf
  • PhIND - Physiopathologie et Imagerie des Troubles Neurologiques
  • EBRAINS AISBL
  • Otto von Guericke University Magdeburg
  • German Center for Neurodegenerative Disease
  • University of Geneva
  • Erasmus University Rotterdam
  • University of Trento
  • Azienda Ospedaliera - Universitaria Città della Salute e della Scienza di Torino
  • University of Turin
  • University of Marburg
  • Heidelberg University 
  • Vita-Salute San Raffaele University
  • Berliner Institut für Gesundheitsforschung
  • Charité – Universitätsmedizin Berlin
  • Bernstein Center for Computational Neuroscience Berlin
  • Einstein Center for Neurosciences Berlin
  • Einstein Center Digital Future
  • University of Barcelona
  • Hospital Clinic de Barcelona
  • Centro de Investigación Biomédica en Red de Enfermedades Neurodegenerativas
  • Lund University
  • University Institute for Advanced Studies
  • IRCCS Fondazione Istituto Neurologico Casimiro Mondino - Pavia
  • Université de Normandie
  • Berlin Institute of Health
  • Bernstein Center of Computational Neuroscience
  • Einstein Center for Neuroscience Berlin
  • August Pi i Sunyer Biomedical Research Institute
  • CIBER - Center for Biomedical Research Network
  • University Institute of Advanced Studies

Research output: Contribution to journalReview articleAcademicpeer-review

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Abstract

The sharing of human neuroimaging data has great potential to accelerate the development of imaging biomarkers in neurological and psychiatric disorders; however, major obstacles remain in terms of how and why to share data in the Open Science context. In this Health Policy by the European Cluster for Imaging Biomarkers, we outline the current main opportunities and challenges based on the results of an online survey disseminated among senior scientists in the field. Although the scientific community fully recognises the importance of data sharing, technical, legal, and motivational aspects often prevent active adoption. Therefore, we provide practical advice on how to overcome the technical barriers. We also call for a harmonised application of the General Data Protection Regulation across EU countries. Finally, we suggest the development of a system that makes data count by recognising the generation and sharing of data as a highly valuable contribution to the community.
Original languageEnglish
Pages (from-to)e526-e535
JournalThe Lancet Digital Health
Volume6
Issue number7
DOIs
Publication statusPublished - 1 Jul 2024

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

  1. SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well-being

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