How traditional informed consent impairs inclusivity in a learning healthcare system: lessons learned from the Utrecht Cardiovascular Cohort

T Katrien J Groenhof; Menno Mostert; Nathan C Lea; Saskia Haitjema; Martine C de Vries; Wouter B van Dijk; Diederick E Grobbee; Folkert W Asselbergs; Michiel L Bots; Rieke van der Graaf

doi:10.1016/j.jclinepi.2022.04.025

How traditional informed consent impairs inclusivity in a learning healthcare system: lessons learned from the Utrecht Cardiovascular Cohort

T Katrien J Groenhof
, Menno Mostert
, Nathan C Lea
, Saskia Haitjema
, Martine C de Vries
, Wouter B van Dijk
, Diederick E Grobbee
, Folkert W Asselbergs
, Michiel L Bots
, Rieke van der Graaf

Van Creveldkliniek, University Medical Center Utrecht, University Utrecht, Utrecht.
University College London Hospitals, London, UK
Leiden University Medical Center, Department of Medical Statistics, Leiden.
UMC Utrecht
University College London

Research output: Contribution to journal › Article › Academic › peer-review

Original language	English
Pages (from-to)	190-194
Number of pages	5
Journal	Journal of clinical epidemiology
Volume	149
Early online date	30 Apr 2022
DOIs	https://doi.org/10.1016/j.jclinepi.2022.04.025
Publication status	Published - Sept 2022
Externally published	Yes

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10.1016/j.jclinepi.2022.04.025

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Groenhof, T. K. J., Mostert, M., Lea, N. C., Haitjema, S., de Vries, M. C., van Dijk, W. B., Grobbee, D. E., Asselbergs, F. W., Bots, M. L., & van der Graaf, R. (2022). How traditional informed consent impairs inclusivity in a learning healthcare system: lessons learned from the Utrecht Cardiovascular Cohort. Journal of clinical epidemiology, 149, 190-194. https://doi.org/10.1016/j.jclinepi.2022.04.025

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title = "How traditional informed consent impairs inclusivity in a learning healthcare system: lessons learned from the Utrecht Cardiovascular Cohort",

author = "Groenhof, \{T Katrien J\} and Menno Mostert and Lea, \{Nathan C\} and Saskia Haitjema and \{de Vries\}, \{Martine C\} and \{van Dijk\}, \{Wouter B\} and Grobbee, \{Diederick E\} and Asselbergs, \{Folkert W\} and Bots, \{Michiel L\} and \{van der Graaf\}, Rieke",

note = "Funding Information: Funding: The UCC-CVRM is primarily financed by the UMC Utrecht . A grant from The Netherlands Organization for Health Research and Development (\# 8480-34001 ) was obtained to develop feedback procedures. UCC\_CVRM website: www.umcutrecht.nl/ucc (in Dutch). Contact information UCC-CVRM: [email protected] . This work is partly supported by the EU/EFPIA Innovative Medicines Initiative 2 Joint Undertaking BigData@Heart grant n 116074 . R.v.d.G. and M.d.V. are funded by the ZonMw ETHMIRE study, grant number 91217027 .",

year = "2022",

month = sep,

doi = "10.1016/j.jclinepi.2022.04.025",

language = "English",

volume = "149",

pages = "190--194",

journal = "Journal of clinical epidemiology",

issn = "0895-4356",

publisher = "Elsevier USA",

}

Groenhof, TKJ, Mostert, M, Lea, NC, Haitjema, S, de Vries, MC, van Dijk, WB, Grobbee, DE, Asselbergs, FW, Bots, ML & van der Graaf, R 2022, 'How traditional informed consent impairs inclusivity in a learning healthcare system: lessons learned from the Utrecht Cardiovascular Cohort', Journal of clinical epidemiology, vol. 149, pp. 190-194. https://doi.org/10.1016/j.jclinepi.2022.04.025

TY - JOUR

T1 - How traditional informed consent impairs inclusivity in a learning healthcare system

T2 - lessons learned from the Utrecht Cardiovascular Cohort

AU - Groenhof, T Katrien J

AU - Mostert, Menno

AU - Lea, Nathan C

AU - Haitjema, Saskia

AU - de Vries, Martine C

AU - van Dijk, Wouter B

AU - Grobbee, Diederick E

AU - Asselbergs, Folkert W

AU - Bots, Michiel L

AU - van der Graaf, Rieke

N1 - Funding Information: Funding: The UCC-CVRM is primarily financed by the UMC Utrecht . A grant from The Netherlands Organization for Health Research and Development (# 8480-34001 ) was obtained to develop feedback procedures. UCC_CVRM website: www.umcutrecht.nl/ucc (in Dutch). Contact information UCC-CVRM: [email protected] . This work is partly supported by the EU/EFPIA Innovative Medicines Initiative 2 Joint Undertaking BigData@Heart grant n 116074 . R.v.d.G. and M.d.V. are funded by the ZonMw ETHMIRE study, grant number 91217027 .

PY - 2022/9

Y1 - 2022/9

UR - https://www.scopus.com/pages/publications/85132821211

U2 - 10.1016/j.jclinepi.2022.04.025

DO - 10.1016/j.jclinepi.2022.04.025

M3 - Article

SN - 0895-4356

VL - 149

SP - 190

EP - 194

JO - Journal of clinical epidemiology

JF - Journal of clinical epidemiology

ER -

How traditional informed consent impairs inclusivity in a learning healthcare system: lessons learned from the Utrecht Cardiovascular Cohort

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