TY - JOUR
T1 - ENDOCOR
T2 - a nationwide consortium of endocarditis teams—initiating a registry for infective endocarditis within the Netherlands Heart Registration
AU - Peijster, Annelot J. L.
AU - Heinen, Floris J.
AU - Douiyeb, Sabrine
AU - van der Stoel, Michelle D.
AU - Selder, Jasper L.
AU - Watson-de Lepper, Anouk G. W.
AU - Houthuizen, Patrick
AU - Meijs, Matthijs F. L.
AU - Kampschreur, Linda M.
AU - Schalla, Simon
AU - Sinha, Bhanu N. M.
AU - Bakker, Annelies L. M.
AU - Kouijzer, Ilse J. E.
AU - Nijland, Francisca
AU - Boel, C. H. Edwin
AU - Riezebos, Robert K.
AU - Duffels, Mariëlle G. J.
AU - Hjortnaes, Jesper
AU - Klautz, Robert J. M.
AU - Verkaik, Nelianne J.
AU - Post, Marco C.
AU - Chamuleau, Steven A. J.
AU - Kamp, Otto
AU - Tanis, Wilco
N1 - Publisher Copyright:
© The Author(s) 2025.
PY - 2025/10/1
Y1 - 2025/10/1
N2 - Background : Despite advancements in diagnostics and treatment strategies, infective endocarditis continues to carry a substantial morbidity and mortality risk. In addition, the field of infective endocarditis contains many gaps in evidence, as international guidelines are predominantly based on low-level evidence. To improve infective endocarditis care and survival rates in the Netherlands, adequate evaluation of diagnostics, treatment strategies and outcomes is essential. Methods : To address this need, a new infective endocarditis registry has been developed by the multidisciplinary ENDOCOR working group with the aim of facilitating nationwide quality control, improving infective endocarditis patient care, and contributing to the numerous gaps in evidence. To optimize data collection, facilitated by the Netherlands Heart Registration (NHR), a pilot project was launched in January 2023 across three selected hospitals. Results : The findings from the first 150 registered patients were presented to highlight the registry’s potential. Following the pilot, many more centres have initiated data collection, demonstrating national engagement and scalability of the initiative. Conclusion : This article outlines the purpose of ENDOCOR, presents initial pilot data and illustrates the potential of the new national infective endocarditis registry to enhance patient care and support future research.
AB - Background : Despite advancements in diagnostics and treatment strategies, infective endocarditis continues to carry a substantial morbidity and mortality risk. In addition, the field of infective endocarditis contains many gaps in evidence, as international guidelines are predominantly based on low-level evidence. To improve infective endocarditis care and survival rates in the Netherlands, adequate evaluation of diagnostics, treatment strategies and outcomes is essential. Methods : To address this need, a new infective endocarditis registry has been developed by the multidisciplinary ENDOCOR working group with the aim of facilitating nationwide quality control, improving infective endocarditis patient care, and contributing to the numerous gaps in evidence. To optimize data collection, facilitated by the Netherlands Heart Registration (NHR), a pilot project was launched in January 2023 across three selected hospitals. Results : The findings from the first 150 registered patients were presented to highlight the registry’s potential. Following the pilot, many more centres have initiated data collection, demonstrating national engagement and scalability of the initiative. Conclusion : This article outlines the purpose of ENDOCOR, presents initial pilot data and illustrates the potential of the new national infective endocarditis registry to enhance patient care and support future research.
KW - Clinical equipoise
KW - Endocor
KW - First national data
KW - Gaps in evidence
KW - Infective endocarditis
KW - Registry
UR - https://www.scopus.com/pages/publications/105015086275
U2 - 10.1007/s12471-025-01979-8
DO - 10.1007/s12471-025-01979-8
M3 - Article
C2 - 40900403
SN - 1568-5888
VL - 33
SP - 299
EP - 306
JO - Netherlands heart journal
JF - Netherlands heart journal
IS - 10
ER -