Personal profile
Research interests
I am a post-doctoral researcher in the Medical Informatics group at AMC. I work on data analysis and data management, specifically the FAIRification of data. Most of my education and work has been in interdisciplinary fields, I thrive in the intersection of technology with biology.
I have performed several integrative data analyses on omics data on model organisms to better understand the digestive system. It was during this time that I realized the advantages of going FAIR. I am enthusiastic about the benefits that FAIR data can bring to data sharing and analysis.
The challenge of making data interoperable is quite intriguing and I am exploring the role of ontologies, ontological models and standard data models in customized solutions in the project EJP RD. The process of making data FAIR can be overwhelming so I am working on breaking this process down with the use-case of rare disease registries and other rare disease resources, to allow for federated analyses on FAIR data.
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Collaborations and top research areas from the last five years
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Building Expertise on FAIR Through Evolving Bring Your Own Data (BYOD) Workshops: Describing the Data, Software, and Management-focused Approaches and Their Evolution
Bernabé, C. S. H., Thielemans, L., Kaliyaperumal, R., Carta, C., Zhang, S., van Gelder, C. W. G., Benis, N., Santos, L. O. B. D. S., Cornet, R., Vieira, B. D. S., Lalout, N., Henriques, I., Ballesteros, A. C. M., Burger, K., Kersloot, M. G., Ehrhart, F., Enckevort, E. V., Evelo, C. T., Gray, A. J. G. & Hanauer, M. & 13 others, , 1 May 2024, In: Data Intelligence. 6, 2, p. 429-456 28 p.Research output: Contribution to journal › Article › Academic › peer-review
Open AccessFile28 Downloads (Pure) -
Cross-Standard Health Data Harmonization using Semantics of Data Elements
Zhang, S., Cornet, R. & Benis, N., 1 Dec 2024, In: Scientific data. 11, 1, 1407.Research output: Contribution to journal › Article › Academic › peer-review
Open AccessFile24 Downloads (Pure) -
A Resource for Guiding Data Stewards to Make European Rare Disease Patient Registries FAIR
van Damme, P., Moreno, P. A., Bernabé, C. S. H., Ballesteros, A. C. M., le Cornec, C. M. A., Vieira, B. D. S., van der Velde, K. J., Zhang, S., Carta, C., Cornet, R., t Hoen, P. A. C., Jacobsen, A., Swertz, M. A., Roos, M. & Benis, N., 2023, In: Data Science Journal. 22, 12.Research output: Contribution to journal › Article › Academic › peer-review
Open AccessFile16 Downloads (Pure) -
Assessing resolvability, parsability, and consistency of RDF resources: a use case in rare diseases
Zhang, S., Benis, N. & Cornet, R., 1 Dec 2023, In: Journal of Biomedical Semantics. 14, 1, 19.Research output: Contribution to journal › Article › Academic › peer-review
Open AccessFile16 Downloads (Pure) -
Automated approach for quality assessment of RDF resources
Zhang, S., Benis, N. & Cornet, R., 1 Dec 2023, In: BMC medical informatics and decision making. 23, 90.Research output: Contribution to journal › Article › Academic › peer-review
Open AccessFile22 Downloads (Pure)
Datasets
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Additional file 1 of Automated approach for quality assessment of RDF resources
Zhang, S. (Creator), Benis, N. (Creator) & Cornet, R. (Creator), Figshare, 2023
DOI: 10.6084/m9.figshare.22800106, https://springernature.figshare.com/articles/dataset/Additional_file_1_of_Automated_approach_for_quality_assessment_of_RDF_resources/22800106
Dataset
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Additional file 1 of Automated approach for quality assessment of RDF resources
Zhang, S. (Creator), Benis, N. (Creator) & Cornet, R. (Creator), Figshare, 2023
DOI: 10.6084/m9.figshare.22800106.v1, https://springernature.figshare.com/articles/dataset/Additional_file_1_of_Automated_approach_for_quality_assessment_of_RDF_resources/22800106/1
Dataset