Personal profile
Specialisation
medical psychology, Patient Reported Outcome Measures (PROMs), Patient Reported Outcomes Measurement Information System (PROMIS), pediatrics, psychometrics
Research interests
My research focuses on the use of Patient Reported Outcome Measures (PROMs, or standardized validated questionnaires) in clinical practice and research.
By training I am a medical psychologist (MSc at Tilburg University) and in 2017 I started my PhD project at the department of Child and Adolescent Psychiatry and Psychosocial Care in the Emma Children’s Hospital Amsterdam UMC. My PhD project focuses on the optimization of PROM use in clinical practice, by overcoming identified barriers on the level of clinicians, patients, the PROM system and PROMs.
I have experience with both quantitative (outcomes and psychometrics) and qualitative (focus groups) research methods and I am currently performing a systematic review.
I am involved in several (inter)national collaborations, whereof my participation in the COVID-19 consortium is a good example. With this consortium I performed several studies on the effects of COVID-19 on mental and social health of children and adolescents.
Besides being passionate about research, I am very much interested in organizing and teaching. This is reflected in the various boards I am member of and in my role as PROM implementation advisor for the PROM expertisecenter.
Education/Academic qualification
Master, Medical Psychology, Tilburg University
1 Sept 2015 → 31 Aug 2017
Award Date: 31 Aug 2017
Bachelor, Psychology, University of Amsterdam
2011 → 2015
Award Date: 31 Aug 2015
Bachelor, Minors, Hunter College New York
Jan 2015 → Jun 2015
Award Date: 30 Jun 2015
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Collaborations and top research areas from the last five years
Research output
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Making sense of PROM outcomes: a mixed method study to optimize graphical visualization formats for children
Limmen, S., van Muilekom, M. M., Korteling, D. L., Teela, L., Boers, M., Terwee, C. B., van Oers, H. A., Haverman, L. & Luijten, M. A. J., Mar 2026, In: Quality of life research. 35, 3, 66.Research output: Contribution to journal › Article › Academic › peer-review
Open Access -
Patient education on PROM completion in clinical care settings: a scoping review
Groenewegen, A., Biller, O. M., Greenhalgh, J., Joseph, A., Lindström Egholm, C., Daams, J., Santana, M., Haverman, L., van Muilekom, M. M. & Unni, E., Dec 2026, In: Journal of Patient-Reported Outcomes. 10, 1, 37.Research output: Contribution to journal › Review article › Academic › peer-review
Open Access -
Towards personalised follow-up care in ovarian cancer using online remote PROMs monitoring: a study protocol of a feasibility trial
Aarts, J. W. M., Oudbier, S. J., Van Muilekom, M. M., Röling, P., Tromp, J., Smeulers, M. & van Lonkhuijzen, L. R., Mar 2026, In: BMJ open. 16, 3Research output: Contribution to journal › Article › Academic › peer-review
Open AccessFile1 Downloads (Pure) -
Utilization of patient-reported outcome measures for women with low health literacy in gynecologic oncology – A mixed-methods study
Seeratan, D. D., Jongkind, A., van Lonkhuijzen, L. R. C. W., van Muilekom, M. M., Ezendam, N. P. M., Damman, O. C. & Aarts, J. W. M., Feb 2026, In: Gynecologic oncology. 205, p. 53-62 10 p.Research output: Contribution to journal › Article › Academic › peer-review
Open AccessFile20 Downloads (Pure) -
What Matters Most? Developing a Core Patient Reported Outcome Set for Individuals With Genetic Intellectual Disabilities: An International Delphi Study
van Silfhout, N. Y., van Muilekom, M. M., Menke, L. A., van Karnebeek, C. D., Haverman, L. & van Eeghen, A. M., Apr 2026, In: Journal of intellectual disability research. 70, 4, p. 403-416 14 p.Research output: Contribution to journal › Article › Academic › peer-review
Open Access
Activities
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APH Mental Health spring meeting
van Muilekom, M. M. (Member of programme committee)
15 Apr 2021Activity: Participating in or organising an event › Participation in conference › Academic
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TULIPS Young Investigators Day 2020
van Muilekom, M. M. (Organiser)
27 Nov 2020Activity: Participating in or organising an event › Participation in conference › Academic
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ISOQOL-NL and Dutch-Flemish PROMIS group: 'Met PROMIS waarde creëren in zorg en onderzoek'
van Muilekom, M. M. (Organiser)
31 Jan 2020Activity: Participating in or organising an event › Participation in conference › Academic
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Consortium 'Child and adolescent mental health and wellbeing in times of the COVID-19 pandemic' (External organisation)
van Muilekom, M. M. (Member)
2020 → …Activity: Membership › Membership of network › Academic
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TULIPS Young Investigators Day 2019
van Muilekom, M. M. (Organiser)
29 Nov 2019Activity: Participating in or organising an event › Participation in conference › Academic
Prizes
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Journal of Quality of Life Research - Most Downloaded Paper 2021-2022
Luijten, M. (Recipient) & van Muilekom, M. (Recipient), 2024
Prize: Other distinction
Datasets
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Patient Education on PROM completion in clinical care settings: a protocol for a scoping review
Groenewegen, A. (contactPerson), Biller, O. (Contributor), Greenhalgh, J. (Contributor), Joseph, A. (Contributor), Lindström Egholm, C. (Contributor), Daams, J. G. (Contributor), Santana, M. (Contributor), Haverman, L. (Contributor), van Muilekom, M. M. (Contributor) & Unni, E. (Contributor), DataverseNL, 22 Nov 2024
DOI: 10.34894/BMX15A, https://doi.org/10.34894/BMX15A
Dataset