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Lidewij Henneman

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Lidewij Henneman

PROF.DR., Principal Investigator

 https://orcid.org/0000-0003-3531-0597
  • 6034
    Citations
1997 …2026

Research activity per year

Personal profile

Research interests

Lidewij Henneman is professor of Patient Perspectives on Genetics at the department of Human Genetics, Amsterdam UMC. She is head of the section Community Genetics and Public Health Genomics.

She is a member of the Health Council Committee Screening in Pregnancy and at Birth.

Her research interests focus on the impact of applications of new genetic technologies before, during and after pregnancy on individuals and society. Together with her research team, she investigates the perspectives and decisions of (potential) users to help align responsible implementation of genetic applications with community needs, employing both qualitative and quantitative research methodologies. 

Areas of interest include: preconception carrier screening for recessive disorders, genomic sequencing in newborn screening, and the use of next generation sequencing for prenatal and postnatal diagnosis of children with congenital conditions.

To set policy agendas and fill the gaps in patient care and support, the research is done in close collaboration with the patient organization Dutch Patient Alliance for Rare and Genetic Disorders (VSOP), relevant healthcare professionals, key (inter)national organizations, and other stakeholders in the field. 

She was board member of the Dutch non-invasive prenatal test (NIPT) Consortium and coordinated research on women’s perspectives (TRIDENT studies), receiving the ZonMw Parel in 2023 for implementation of NIPT in the Netherlands. She won the Societal Impact Award 2016 (topic NIPT), and received the Dutch Public Health Award (Volksgezondheidsprijs) for her PhD thesis on Preconceptional cystic fibrosis carrier screening. 

She (co-)published over 190 international articles (H-index 39) and completed supervision of 19 PhD candidates/thesis. 

Related documents

Education/Academic qualification

Appointed professor of patient perspectives on genetic testing, Vrije Universiteit Amsterdam

Award Date: 1 Oct 2020

PhD, Preconceptional cystic fibrosis carrier screening - desirability and feasibility in the Netherlands, Vrije Universiteit Amsterdam

Award Date: 19 Jun 2002

Keywords

  • H Social Sciences (General)

Expertise related to UN Sustainable Development Goals

In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):

  1. SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well-being

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  • Early versus late termination for fetal anomalies: Women's perspectives and psychological impact in a mixed methods study

    Lust, E. E. R., Bronsgeest, K., Henneman, L., Crombag, N. M. T. H., Bilardo, C. M., Galjaard, R.-J. H., Sikkel, E., Coumans, A. B. C., Elvan-Taşpınar, A., Galjaard, S., Go, A. T. J. I., Manten, G. T. R., Pajkrt, E., van Leeuwen, E., Haak, M. C. & Bekker, M. N., Mar 2026, In: Acta obstetricia et gynecologica Scandinavica. 105, 3, p. 444-454 11 p.

    Research output: Contribution to journal › Article › Academic › peer-review

    Open Access

  • Operationalizing the Wilson-Jungner principles for the genomics era: Consensus recommendations from the International Consortium on Newborn Sequencing

    Downie, L., Yeo, J., Minten, T., Heald, R., Ansel, D., Baker, M., Balciuniene, J., Berg, J. S., Boemer, F., Chung, W. K., Cope, H. L., Eckstein, D. J., Encina, N., Faivre, L., Ferlini, A., García-Villoria, J., Gelb, M. H., González de Aledo-Castillo, J. M., Golden-Grant, K. & Parad, R. B. & 266 others, Shah, N., Stark, Z., Sund, K. L., Tsipouras, P., To, M., Bick, D., Green, R. C., Adelson, S., Agolini, E., Al-Maraghi, A., Alex, K., Alkuraya, F., Akil, A. A., Alshehri, M., Ansel, D., Armstrong, N., Aujla, M., Bailey, D., Baker, M., Balciuniene, J., Barry, A., Bennetts, B., Berenger, M., Berg, J., Bernstein, D., Bhatatcharjee, A., Bhatt, S., Bick, D., Bishop, T., Bitton, A., Boemer, F., Bonhomme, N., Bowley, G., Boyd, B., Brennenstuhl, H., Brenner, S., Bresnahan, M., Brewster, T., Brooks, P. J., Broomberg, K., Brower, A., Gentile, M., Giordano, J., Jensen, U. G., Godler, D., Gold, N., Goldenberg, A., GoldenGrant, K., Goldman, C., González de Aledo-Castillo, J. M., Gottlieb, D., Green, R., Greene, C., Greenstein, B., Grosse, S., Grueters, A., Gumus, G., Hagman, K., Hall, K., Harmant, A., Hartmanis, S., Hayeems, R., Heald, R., Hegde, M., Heiner-Fokkema, R., Henneman, L., Hernan, B., Hobbs, C., Holm, I., Horwitz, L., Hu, Z., Iascone, M., Irvine, K., Jin, G., Kalbfleisch, K., Nyegaard, M., O'Sullivan, J., Ojodu, J., Orsini, P., Oza, A., Paleologos, K., Parad, R., Peay, H., Pelo, M., Philstrom, C., Pichard, D., Pichini, A., Pichini, A., Pirreca, M., Ponikowska, M., Ponte, A., Posch, A., Powell, C., Protopsaltis, L., Quevedo, Y., Raia, M., Reimer, R., Rohrwasser, A., Rollier, P., Rottensten, L., Rtskhiladze, I., Sachedina, N., Sahyoun, G., Satija, A., Schaaf, C., Schleit, J., Scott, R., Scully, L., Seeloff, S., Brown, G., Buchanan, J., Bupp, C., Cameron, C., Capacchione, L., Carli, D., Ceballo, O. C., Chan, K., Chance, J., Charalambidou, G., Chen, W., Chen, Y.-R., Chung, W., Chung, B., Clarke, M., Clasper, S., Cole, F. S., Cope, H., Coury, S., Cox, T., Dangouloff, T., Paul Daniel, E. J., Danielsen, K. E., Davoine, E., Defay, T., Gandhi, G. D., Dewulf, J., Diller, L., Dixit, P., Dolle, M., Downie, L., Drake, E., Drury, S., Duintjer, A., Duz, B., Eckstein, D., Ellinwood, M., Kander, I., Kaplun, L., Kasperaviciute, D., Kassahn, K., Kauko, L., Kaukonen, R., Kelly, N., Khangsar, D., King, J., Kingsley, C., Kingsmore, S., Kirms, B., Klein, R., Koelker, S., Kousa, Y., Krupoderova, E., Kruszka, P., Langley, K., Leckie, C., Lecommandeur, E., Ledbetter, D., Lee, P., Lee, B., Leve, C., Lewis, C., Lewis, A., Liu, R., Longon, M., Lundquist, A., Lunke, S., MacDuffie, K., Malhotra, A., Marcelis, L., Martinez-Fresno, M., Matthijs, G., Melbardis, R., Merritt, J., Servais, L., Shah, N., Siitonen, M., Singh, S., Siu, C., Smith, H., King, L. S., Sondheimer, N., St George, L., Stark, Z., Steiner, R., Stoltze, U., Stray-Pedersen, A., Sund, K., Tafas, P., Teekakirikul, P., Thanos, D., Thurm, A., To, M., Tsipouras, P., Tuff-Lacey, A., Turner, H., Twiss, P., Ulph, F., Uribe, D., Urv, T., Vacher, C., van den Bogaert, K., van der Burg, M., van Steijvoort, E., Veloudi, Y., Vengoechea, E., Voorhoeve, E., Vu, M., Wasserstein, M., Watson, M., Webb, B., Ellsworth, K., Ellsworth, K., Badji, R. M., Wedell, A., Elsea, S., Metherell, L., Westover, T., Encina, N., Mikkelsen, N. B., Wiedemann, A., Etheredge, H., Milko, L., Wright, M., Faivre, L., Miller, N., Wu, C., Ferlini, A., Minten, T., Yeo, J., Ferrie, M., Morgan, S., Yin-Hsiu Chien, N., Finkel, T., Mosiewicz, K., Yusuff, S., Furu, P., Mütze, U., Zemojtel, T., Galarza-Cornejo, J., Nicklen, S., Zettler, B., Gao, Y., Niemela, M., Zhao, Z., Garcia-Villoria, J., Niu, D.-M., Ziff, J., Gardner, L., Norris, S., Zimmerman, R., Gaviglio, A., Novelli, A., Zuccolo, M., Gelb, M., Nusair, A. & Gold, N. B., 1 Jan 2026, In: Genetics in medicine. 28, 1, 101618.

    Research output: Contribution to journal › Article › Academic › peer-review

    Open Access

  • Public and parent perspectives on genomic sequencing in newborn screening: a scoping review

    Smits, S. G., Onstwedder, S. M., Rigter, T., Rodenburg, W. & Henneman, L., 2026, (Accepted/In press) In: European journal of human genetics.

    Research output: Contribution to journal › Review article › Academic › peer-review

    Open Access
    File
    6 Downloads (Pure)

  • Age-specific uptake of non-invasive prenatal tests (NIPT) in Germany: a decision theory-based analysis

    Krawczak, M., Eiben, B., Sendel, S., Caliebe, A., Henneman, L., Glaubitz, R., Borth, H. & Schmidtke, J. R., Dec 2025, In: Journal of community genetics. 16, 6, p. 769-774 6 p.

    Research output: Contribution to journal › Article › Academic › peer-review

    Open Access
    File
    14 Downloads (Pure)

  • An exploration of the perspectives of Dutch adults experiencing a genetic condition on human germline gene editing

    Arnold, S. J. A. N., Houtman, D., Retel Helmrich, I. R. A., Hilberink, S. R., Riedijk, S. R. & ‘The DNA dialogues’ Consortium, Oct 2025, In: Journal of community genetics. 16, 5, p. 489-501 13 p., e803.

    Research output: Contribution to journal › Article › Academic › peer-review

    Open Access
    File
    19 Downloads (Pure)
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  • 8 Membership of committee
  • 4 Consultancy
  • 3 Membership of board
  • 1 Membership of network
View all 16 activities
View all 13 press/media