Description
Poster PresentationTitle: Recruitment campaign targeting patients with mild cognitive impairment or dementia via the Dutch Brain Research Registry
Authors: Lisa Waterink, Netherlands; Tessa Jansen, Netherlands; Florence van der Zee, Netherlands; Marlijne Boumeester, Netherlands; Floor Duits, Netherlands; Sietske Sikkes, Netherlands; Wiesje van der Flier, Netherlands; Marissa Zwan, Netherlands
Session: POS17. Public involvement in research - Ex-GAM Foyer - Floor 2, 08/10/2025, 10:00 - 15:45
Introduction: The Dutch Brain Research Registry (DBRR) is an online platform that facilitates participant recruitment for brain-related research. Recruitment of participants with mild cognitive impairment (MCI) or dementia remains challenging. To increase the number of patients in the registry, a targeted media campaign was implemented.
Methods: Before the campaign, 776 registrants reported having a diagnosis of dementia or MCI (~2% of ±39.000 DBRR-registrants). The targeted campaign ran for one month (12 November - 15 December 2024), utilizing earned, owned, and paid media channels. Paid media consisted of storytelling-based branded content via print, online articles, and audio ads (costs €28.000). Content was developed consulting a patient panel and produced in collaboration with a media group. Earned and owned media were used to enhance visibility of paid media. These included newsletters distributed by partner organizations (earned) and social media posts (owned). Eligible registrants with a self-reported diagnosis of MCI or dementia were invited to participate in four studies: one online study, two longitudinal online-cohort-studies, and one medication trial. Participants were allowed to take part in multiple studies.
Results: In total, 375 individuals registered during the campaign (67% female, mean age 63, costs €74,65 per registrations) of which 45 with self-reported diagnosis of MCI or dementia (6% increase, costs €622,22 per patient). The campaign ultimately led to 37 study-inclusions (costs €756,76 per participant) which were distributed as follows: 17 in the online study, 18 in the online longitudinal cohort-studies, and 2 in the medication-trial.
Discussion: A short targeted media campaign increased the number of patients with mild cognitive impairment (MCI) or dementia by 6% for an online recruitment registry, though costs were high. Recruitment for online studies resulted in more inclusions compared to a medication trial. These findings underscore the ongoing challenge of reaching targeted clinical populations - even through a specialized online recruitment platform.
| Period | 6 Oct 2025 → 8 Oct 2025 |
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| Event type | Conference |
| Location | Bologna, ItalyShow on map |
| Degree of Recognition | International |